For the last three-and-a-quarter years I have been writing a book on research ethics. It has been like doing another PhD, only with reviewers instead of supervisors. Four sets of reviewers: two sets of proposal reviews and two sets of typescript reviews. I have to thank my lovely publisher, Policy Press (part of Bristol University Press), for giving me so much support to get this book right.
This has been the hardest book I’ve written and I hope never to write another as difficult. On the plus side, I’m happy with the result. It is different from other books on research ethics in three main ways. First, it doesn’t treat research ethics as though they exist in isolation. I look at the relationships between research ethics and individual, social, institutional, professional, and political ethics, and how those relationships play out in practice in the work of research ethics committees and in evaluation research. That makes up part 1 of the book.
Second, it demonstrates the need for ethical thinking and action throughout the research process. In part 2 there is a chapter covering the ethical aspects of each stage of the research process, from planning a research project through to aftercare. There is also a chapter on researcher well-being.
Third, the book sets the Indigenous and Euro-Western research paradigms side by side. This is not to try to decide which is ‘better’, but is intended to increase researchers’ ethical options and vocabularies. I am writing primarily for Euro-Western readers, though the book may be of use to some Indigenous researchers. There is a sizeable and growing body of literature on Indigenous research and ethics, including books, journals, and journal articles. Using this literature requires care – as indeed using all literature requires care (see chapter 7 of my forthcoming book for more on that). But Indigenous literature, as with other literatures by marginalised peoples, requires particular care to avoid tokenism or appropriation.
Many Euro-Western researchers are completely ignorant of Indigenous research. Some know of it but are under the misapprehension that it is an offshoot of Euro-Western research. In fact it is a separate paradigm that stands alone and predates Euro-Western research by tens of thousands of years. Some Indigenous researchers and scholars are now calling for Euro-Western academics to recognise this and use Indigenous work alongside their own. My book is, in part, a response to these calls.
It was so, so hard to cram all of that into 75,000 words – and that includes the bibliography which, as you can imagine, is extensive. There was so much to read that I was still reading, and incorporating, new material on the morning of the day I finished the book. I’ve found more work, since, that I’d love to include – but I had to stop somewhere.
I awaited my final review with great trepidation, aware of the possibility that the reviewer might loathe my book – some previous reviewers had – and that that could put an end to my hopes of publication. Was I looking at three-and-a-quarter years of wasted work? I was so relieved when my editor emailed to say the review was positive. Then the reviewer’s comments blew me away. Here’s one of my favourite parts: “In my view the author through excellent writing skills has covered very dense material (a ton of content) in a very accessible way.”
I was even more delighted because this review came from an Indigenous researcher. She waived anonymity, so I have been able to credit and thank her in the book. I will not name her here, as I do not have her permission to do so; you’ll have to read the book if you want to find out.
Finishing a book feels great, and also weird. It’s like losing a part of your identity, particularly with a book you’ve lived with for so long. Though there’s still lots of work to do: I have to write the companion website, give input on the book’s design, read the proofs, start marketing… publication is due on 1 November, which feels a long way off but I know how quickly five months can pass.
I think this book will be controversial. A senior and very knowledgeable academic told me that one reason I could write such a book is because I’m not in academia. I’m glad if I can use my independence to say things others cannot say – as long as I’m saying useful things, at least.
More than anything else, I hope the book helps to make a difference. In particular, I would like to make a difference to the current system of ethical regulation which is too focused on institutional protection and insufficiently focused on ethical research. It is also terrible at recognising and valuing the work of Indigenous research and of Euro-Western community-based or participatory research. When I was preparing to write the book, I interviewed 18 people around the world and promised them anonymity. Some were research ethics committee members and others had sought formal approval from ethics committees (or institutional review boards in the US). I heard tales of people completing ethical approval forms with information that committees wanted to see rather than with actual facts; people teaching students how to get through the ethical approval system instead of teaching them how to conduct ethical research; people acting ethically yet in complete contravention of their committee’s instructions; people struggling to balance ethical research with Indigenous communities with the inflexible conditions set by ethics committees. Although many of the people who serve on ethics committees are highly ethical, the system within which they are forced to work often prevents them from acting in entirely ethical ways. It seems to me that this system is not currently fit for purpose, and there are many other people who think the same. I hope the evidence I have gathered and presented will help to create much-needed change.
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