Rethinking Vulnerability and Sensitivity

Research ethics committees are very concerned with the potential vulnerability and sensitivity of research participants. So far, so laudable – but I don’t think they show their concern in particularly useful ways. Gaining formal approval from a research ethics committee is a hoop many researchers have to jump through, but then the real work of ethics begins.

For most research ethics committees, vulnerability is an attribute of some groups and not others. Groups who may be deemed to be vulnerable include children, older people, or adults with learning disabilities. These categories are specified by UKRI who oversee government-funded research in the UK. But if you look at this in more detail, it doesn’t stand up. Take children. Say a competent 14-year-old is a young carer for their single parent who lives with severe and enduring mental health problems and drinks alcohol all day. Which of those two people might be better able to give informed consent to the child taking part in research? Conversely, people are not necessarily vulnerable because they are older. President Biden is 79 and I can’t imagine him being seen as vulnerable. Learning disabilities don’t necessarily make people vulnerable either, as some of my dyslexic friends would no doubt agree.

Vulnerability is not an attribute, it is a state we all move into and out of in different ways. The start of the Covid-19 pandemic made this abundantly clear. Quite suddenly we were all vulnerable to illness, perhaps death; to increased anxiety; to fear for loved ones who fell sick; to bereavement. Heads of state were no safer than ordinary people living in apartments or suburbs, and researchers were every bit as vulnerable as their participants. Perhaps one small positive side-effect of the pandemic is this: we can see more clearly that we are all vulnerable to changing circumstances resulting in trouble or trauma. Which does not mean we are all vulnerable all the time – but that any of us may be, or may become, vulnerable at any time. As researchers, I think it is essential for us to be aware of this, and ready to face and manage it when it occurs.

Vulnerability and sensitivity have something in common. Just as it is not possible to predict from group membership who is and is not vulnerable, so it is not possible to predict who will and will not be upset by a topic. Of course some topics are likely to be upsetting: female genital mutilation, suicide, sex work, and so on. And we need to put whatever precautions we can in place if we are investigating topics like these, that are evidently sensitive: to make the experience as safe as possible for our participants, and for ourselves. But we cannot be sure that everyone will find these topics equally sensitive; there are people who can take such topics in their stride.

Conversely, some people may be upset by apparently innocuous topics. Suppose a market researcher is investigating people’s perceptions of homewares. In one interview, the researcher asks their question about teapots, and realises their participant is struggling to hold back tears. The participant explains that the last gift ever given to them by their beloved mother, who died exactly one year ago, was a teapot. Perfectly plausible; impossible to foresee.

So, we can’t always predict everything everyone will be sensitive about, and we shouldn’t pretend we can. But, again, we need to equip ourselves with the mental and emotional intelligence and dexterity to be able to deal with the unexpected. Because if there is one thing we can predict, it is that at times we will face the unpredictable.

This blog, the monthly #CRMethodsChat on Twitter, and the videos on my YouTube channel, are funded by my beloved Patrons. Patrons receive exclusive content and various rewards, depending on their level of support, such as access to my special private Patreon-only blog posts, bi-monthly Q&A sessions on Zoom, free e-book downloads and signed copies of my books. Patrons can also suggest topics for my blogs and videos. If you want to support me by becoming a Patron click here. Whilst ongoing support would be fantastic you can make a one-time donation instead, through the PayPal button on this blog, if that works better for you. If you are not able to support me financially, please consider reviewing any of my books you have read – even a single-line review on Amazon or Goodreads is a huge help – or sharing a link to my work on social media. Thank you!

How To Find A Collaborator

The question to ask first is, when might you want to find a collaborator? Some work needs to be done alone, such as most doctoral research. Some work is sometimes best done alone, such as writing an opinion piece for a high-profile blog. But some work definitely needs to be done in collaboration. Most research benefits from collaboration. When I am commissioned to do a piece of research alone or with one other colleague, I always recommend that the commissioner set up a small group of relevant people to advise and steer the research project. And writing often benefits from collaboration too. In fact academic writing is always more or less collaborative: even if only one person is named as the author, the work will have been influenced by other scholars, colleagues, reviewers, editors – the list is long. And if more than one author is named, the work is likely to have benefited from the sustained engagement of more than one person.

Some work really needs collaborators. Three colleagues and I wrote Creative Research Methods in Education, and it was a better book, as a result, than it would have been if any three or two of us had worked on the project. I often receive requests to collaborate with others on research, or writing or both. Sometimes they are from friends or colleagues, and I always consider those carefully. Narelle Lemon from Swinburne University in Melbourne, Australia, suggested we work together on the education book when we first met in person. Sometimes requests to collaborate come from people I don’t know. The reception those ones get will vary depending on what the person is proposing and how they put that across. If the email is from a free email provider such as gmail, with lots of spelling mistakes, asking me to collaborate on research to help prove that hemlock cures cancer – and to contribute to the funding of that research – I will reach swiftly for the delete button. Conversely, if the email is from an organisational address, well written, and asking me to collaborate on work that is within one of my areas of expertise, I will respond – and if the enquirer mentions that they have a budget, I am likely to respond positively.

The best collaboration request I have had from a stranger came from Richard Phillips of Sheffield University. His initial message, in July 2018, simply said: “Dear Helen, I would like to explore the possibility of involving you in a workshop on creative writing and social research, and have a budget for this. It would be great to hear from you and discuss. Thanks, Richard.” Short, to the point, and very interesting indeed. I emailed straight back, and in his reply he told me he liked my book on creative research methods. Better and better! We spoke a couple of days later, met a couple of weeks after that, ran the workshop in November 2018, and our book on Creative Writing for Social Research was published in January 2021.

If you want to find a collaborator, the most important thing is to do your homework. If you want someone to co-write a journal article about the role of manicures in ex-convict rehabilitation, you need to find someone who shares that niche interest. And when you do find someone who seems suitable, make sure your potential collaborator likes to write; not everyone does. There should be no need to introduce yourself, because the person you are contacting should be able to find information about you online; if they can’t, they are much less likely to agree to collaborate with you.

Overall, people are more likely to agree to collaborate if you are their peer or above, the work you are proposing is within their areas of interest, and you have a budget. If you have nothing but passion for a project, it is still worth asking suitable people if they are willing to collaborate, but be prepared for rejection. Also, please be aware that offering to collaborate for free could put you at risk of being exploited. However much you care about an issue, it is equally important to take care of yourself.

This blog, the monthly #CRMethodsChat on Twitter, and the videos on my YouTube channel, are funded by my beloved Patrons. Patrons receive exclusive content and various rewards, depending on their level of support, such as access to my special private Patreon-only blog posts, bi-monthly Q&A sessions on Zoom, free e-book downloads and signed copies of my books. Patrons can also suggest topics for my blogs and videos. If you want to support me by becoming a Patron click here. Whilst ongoing support would be fantastic you can make a one-time donation instead, through the PayPal button on this blog, if that works better for you. If you are not able to support me financially, please consider reviewing any of my books you have read – even a single-line review on Amazon or Goodreads is a huge help – or sharing a link to my work on social media. Thank you!